Parents Helping Parents: An Ongoing Experience

Helping parents to understand rare diseases

Rare diseases are not that rare: worldwide, one in 12-17 people will be affected by a rare disease. Newborn screening for rare diseases has been adopted by many European and North American jurisdictions. The results of genetic testing are given to millions of families and children’s guardians who often turn to the Internet to find more information about the disease. We found 42 medical forums a...

Helping parents cope with a cleft lip and palate.

O PSO M M IN G \ ir die leek is die gebied van 'n gesplete verhemelte in geheimsinnigheid en gebrekkige kennis gehul. ’n Gesplete lip en verhemelte wat nog nie herstel is nie is ’n onaangename en miskien selfs onstellende gesig, en ouers voel nie altyd heeltemal oortuig deur die gerusstellende woorde van dokters en verpleegsters dat plastiese chirurgie wonderlike werk aan babas met ’n gesplete ...

Managing adverse birth outcomes: helping parents and families cope.

Unexpected adverse fetal and neonatal outcomes (e.g., stillbirth, birth trauma, congenital anomalies) present a crisis for the family and the medical care team. In cases of stillbirth, the family physician should be flexible in supporting the parents' choices, validate the loss, and work as a team with the nursing staff. Psychosocial support includes offering counseling services, assessing wome...

Parents, Babies, and More Parents

Parents' Role Before and During Infancy: An Islamic Perspective

Background: The infants depend on their parents for growth and survival during the early years of life. Therefore, the parents play a key role in the preservation and improvement of the infants’ physical and psychological health. Religion is one of the most influential factors that affect parenting. Regarding this, the present study aimed to investigate the Islamic perspectives on parents' role...